hair falling out due to alopecia, need a friendly chat and some advice please :)

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hi, im 24 years old and i've been suffering with alopecia for about 4 months. it first started with a bald patch the size of a 50 pence piece. i went to the doc who diagnosed it as a fungal infection, she assured me it would grow back. it didnt, it just got bigger. i saw a different doc who diagnosed me with alopecia areata, he ran some blood tests on me, everything was clear apart from i was lacking in vitamin D and vitamin B12. I am now on tablets for this. my doc told told me my hair loss could be due to my B12 deficiency and maybe the tablets i had to take would stop it falling out. its been six weeks now and my hair is coming out even more! i only have to run my hand through my hair and i have about 10 - 15 strands on my hand. my bald patch is at the back of my head and its about 3 inches wide and 2 inches high but is not noticeable if my hair is down or if i tie it to the side in a bun. i am grateful that its not as noticeable as some peoples but its causing me a huge amount of distress. i have always had very thick, long hair since i was young but now its very thin and flimsy! my doctor refused to give me anything for it, just told me to keep an eye on it but its got considerably bigger than when he first saw it. im going back to the doctors this week, should i demand to see a specialist or should i ask for cream or any other medication for it? im at my wits end at the moment, this has really knocked my confidence and i didnt have a lot to begin with! i think about it 80% of the time that im awake and when im lying in bed at night, my mind is racing which makes it difficult to sleep. my parents have been very supportive, but i think i would like to speak with a fellow sufferer who knows what im going through, how i feel, and could maybe give me some advice on how to cope with this condition. thank you x

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  • Posted

    Hi, I know what you are going through. My hairdresser noticed a small bald patch, the size of a 10p about 5 weeks ago, it is now about 4" by 3" and getting bigger every day. Like you I am finding it hard to sleep as I am worrying about pulling more out. I went to the doctor who made me an appointment to see a specialist, which is 2 weeks today. Hopefully they will help. People say try not to worry about it, how we supposed to do that? I also have long thick hair and luckily it is not noticable at the moment if my hair is down but I am constantly concious of it when out in public. I am nervous of washing, brushing or drying my hair at the moment.

    Fingers crossed we get the help we need. I will post again when I have seen the specialist or before just to keep in touch x

    • Posted

      Hi wen u go to a specialist they will tell u this they can't do anything about it cause they don't nw wa caused it. I nw what u going through m8 I got alopecia myself I find it hard to wash my hair

  • Posted

    Hi Alexandra, sorry to hear about your hair problem. I too a while ago went through a balding crisis, I didn't realise a balding patch was materialising coz it was on the back of my head. I also went to my docs, they checked to make sure I didn't have a skin problem (and I didn't), so it must have been down to stress (which I had been going through for a while with family problems). I was told, it may or may not grow back, they didn't know, this wasn't very helpful to hear from a male doctor who had a large thick wad of hair of his own.....and told him this. So, I took matters into my own hands, as I haven't had this sort of problem before (now in my forties), and bought Rosemary shampoo and conditioner from local health shop (brilliant properties in it), also rinsed hair adding few drops of Tea Tree oil in water (in case it was fungal) and MOST IMPORTANTLY......RELAXED!!!!!!!!!! After a couple of weeks I felt new growth of hair coming through, patchy at first, but was REALLY RELIEVED to see my hair STARTING TO GROW BACK.

    I would suggest you ask to be referred to a specialist anyway as that always takes time ......in meantime, try do what I've done and then notice any difference after a couple of weeks.....and especially think about what could be causing you be anxious or thinking negatively as this can suddenly shed more hairs than normal.

    I am interested in knowing know how you got on.

    Regards, Shan

  • Posted

    You have done very well smile to get to :

    "........everything was clear apart from i was lacking in vitamin D and vitamin B12. I am now on tablets for this. my doc told told me my hair loss could be due to my B12 deficiency ......"

    Next step must be to find out why you are low on D & B12. ( A healthy person of your age would not normally be low on these & so should not need tablets )

    Low on D ..... not enough sunlight ? ( do you live up north ? )

    Low on B12 ... Your body should be able to store enough B12 for many months of need so you may have been low on this for some time. Possible reasons would include PA, coeliac.

    Tell them you would like to know the cause rather than just treating your symptoms

    Good Luck !!! !!!

  • Posted

    Hi, thanks for replying guys! Bobble, I sent you a messsge with my email address in. Thank you cheery-one for your advice, I shall definitely look into getting that shampoo you mentioned! Rex carr, apparently, according to my doctor, no I dont get enough sunlight! I dont understand this because I am outdoors more often than I am in! I do live in Wales though, I dont know if thats worde than living up north lol. But I think I have been lacking in B12 for a while as I dont eat any red meat which id full of vitamin B12. I'm getting more blood tests in the new year and if my B12 tablets havent git my condition under control I will be tested for pernicious anaemia. Thank you for your input on this though. Sorry if I've made any spelling mistakes. I'm using my phone and my screen is rather small! X
  • Posted

    I posted a couple of links above but forgot that such things need to be approved ( good idea methinks )

    Dont know how deep you want to go into this by yourself.....if you are interested try putting

    "coelaic_disease symptoms site:coeliac.ie"

    into a google search box for a few links on coeliac symptoms

    Also there is a bit on PA on this site ( i.e. patient.info ) if you go to the 'conditions' tab

  • Posted

    Well I went to see a specialist who confirmed it was alopecia, says a shock can cause it.....I can't think of anything that has shocked me recently! The good news is little hair has started to grow back. My hair is brown but the hair coming through is jet black, I was born with jet black hair and he says this can happen and it should change in time.

    The bad news was that as I have already had a patch it is more likely to come back again somewhere else.

    He prescribed me some steroid cream, although he did admit it probably doesn't help! although it may take away the itching and burning of another patch.

    The other advice he gave me was not to plait, tie up or pull the hair in anyway and not to have hair coloured.

    Seems it is just something we have to live with as there is no cure and just keep checking for further patches and fingers crossed one day they find a cure x

  • Posted

    Think back now....has there been anything happening in your life or around you in other's lives that has been a stressful or anxious time?

  • Posted

    Thanks for everyones advice! My B12 deficiency is from not eating red meat according to my doc! Bobble,.glad to hear your hair is starting to grow back! I read somewhere that the hair growing back will be a different colour. I'm still putting pressure on my doc to refer me to a specialist! I have also read that onion juice can stimulate hair re-growth!

    Cheery-one, I've been having problems with my partner for a few months which has caused me to be stressed and anxious sometimes for days on end! I know stress doesnt help with this condition but everyone gets stressed, and its so hard to stop worrying about things sad x

  • Posted

    P.S.......my bald patch did grow back after a while..... hair roots have a regular cycle and you will probably find it is growing back thicker than it was before....LOOK this UP and you WILL FIND WHAT YOU'RE SEARCHING FOR smile x
  • Posted

    This is to Bobble.......

    "He prescribed me some steroid cream, although he did admit it probably doesn't help! although it may take away the itching and burning of another patch."

    .........just a thought......have you come into contact with any animals.....or anyone who has animals?

    Regards

    Sharon

  • Posted

    Alexandra, I have also heard the onion juice theory but not heard of anyone trying it but will try anything, there is also tablets that are supposed to help from the health shop called sea kelp. Although specialist I saw said it will grow back in time and people who are using these things think they are working!

    Cheery one, I can't think of anything that has shocked me and I don't normally get stressed, usually to laid back but I suppose I have been anxious and stressed since hair started falling out

    Bev x

  • Posted

    Cheery one, There is a dog, a parrot and a budgie where I work and live (live at work) but have always been round animals. Is there some connection?

    Bev x

  • Posted

    Bev, it is very common to catch ringworm....which is a fungal infection....has any of the animals around you had any probs with their skins within last few months?

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