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After MRI with contrast of brain, cervical, thorasic, and lumbar my csf leak was not detected. From what I am reading this is pretty normal not to find the leak. I was dx with intracranial hypotension a week ago after suffering headaches for 5 weeks and being put through chronic migraine treatment torture. I did a nerve block, IV treatments at home, several IM medicaitons, oral meds, several trips to the ER and nothing was helping. Finally my Dr. ordered the Lumbar Puncture and there realized the pressure was so low. I am on bedrest for now and IV fluids at home for the next 7 days and advised drink a lot of fluids. My Dr. said if not better by Tuesday they will attempt a blood patch even though they don't know where the leak is. I am hesitant with that and looking for advise from those that have been through this. Symptoms I have had over the past month are the headache of course that sometimes just 1 side sometimes both mostly feels like a lot of pressure, jaw pain pressure, numbness in my face/cheek, a lot of recent pressure around the bridge of my nose. I have numbness down my legs, feet, hips, and especially my toes, heels and knees. I hear ringing and popping/tapping noise in my head/ear all the time. If I remain in bed my pain is 1/2 but after sitting up for 20-30 minutues is starts to rise and within an hour easily I can be at a 10. I hope this all sounds a like for you all and that my dr. really is on the right path. She stated yesterday my brain MRI looks normal just kept stating no leak. Any suggestions, comments would be appreciated. Thanks, Michelle from Ohio
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