ATORVASTATIN and severe muscle pain

Posted , 36 users are following.

Hello.  I was taking Lipitor (atorvastatin) for 3 months before I started to get SEVERE muscle pain in my right arm to the point where suddenly, I could not left my arm or hold a cup without having severe pain.  I stopped taking the statin.  I've been off it now for 8 days.  The severe pain seems to come and go (the pain itself has never really disappeared, it just seems to start off small in one area, mostly my shoulders, then get worse before it calms down again....only to reappear in the other arm!)  I've read that COg10 helps, so I have just started taking 400mg over the last three days.  I thought I turned the corner yesterday, only to wake up in the middle of the night with the severe shoulder/arm pain again.  Any thoughts from othere who experienced this, and how long it took for you to recover after stopping the statin?  I am 60 and was very active before this taking this -- now, i can't even pick up a golf club without pain.  I am trying to stay positive with hopes that eventually, the pain will go away and my muscles will start to repair themselves -- but, I'm a little scared after reading some things on the internet, of course.

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  • Posted

    Hi Mark,

    I was on 20mg of atorvastatin for approximately 5 months and had similar problems and then some. Frequent headaches, confusion, memory loss and lots of neck and shoulder pains. I was dropping things all the time and didn't know what was causing all the problems because the Dr's kept saying it can't be the statin. So I quit taking them on my own and things got better but it took about 6 months. I'm now 9 months off and still have neck issues but head problems are much better. Give it time and you should see improvement. The Dr's wanted to start me on another statin but I just can't take the chance of those symptoms coming back again.

    Scott

    • Posted

      Thanks for replying, Scott.  The Dr. already offered me another statin, and I flat out told him NO MORE STATINS!  I would go near the stuff for all the money on earth after what I'm experiencing.  After ding some reading, I put myself on a daily dose of 500mg of COQ10, 500mg of magnesium, 1000 IU of Vit E, and 2 grams of carnitine per day...in addition to a vit B complex as well.  I never took so many vitamins in my life...but research indicates that this vitamin cocktail helps repair the muscle damage. We'll see...  Each night I go to bed and pray that tomorrow I'll wake up normal again.  8-(

    • Posted

      Hi. New to this particular part of patient.info and need some information about Atorvastatin. I stopped taking it about 3 weeks ago after being on it for several years. Non allergic rhinitis, peripheral neuropathy, mood swings, irritability, balance etc etc. Since stopping taking it the neuropathy seems to have got a bit worse and more frequent and I am suffering depression. Do the side effects from the statin get temporarily worse before they get better after stopping taking them? My G.P. told me that they build up in your system over the years so not to expect any improvement for at least a couple of months but do they actually get worse before they get better as the nerves start to repair? Sorry if I've waffled!

  • Posted

    Can i ask what your lipitor dose was?
    • Posted

      I was on 10 mg of simvistatin, my symptoms took a year to start then muscle weakness,stiffness,nueropathy etc.. i quit took me about 2 years to feel almost myself,now i have no symptoms that i know of. You were on it a short amount of time,i bet within 6 months at most you will feel much better. Xx
  • Posted

    Hello,  I was taking it for many years and then got a bunch of bad reactions including the muscle pain and weakness just like you.

    It took approx 6 months to get all my strenght back. 

    I also had night sweats, leg cramps, which I still get once in awhile, and it's been 2 years without statins. I also became pre-diabetic from them.

    Bad stuff, never again. I fired my cardiologist and didn't get a new one either.

     

    • Posted

      I hear you, Bill.  It's poison to some of us.  Not being able to swing a golf club kills me!  8-)   I'm hoping to recover enough to at least cast a fishing rod in June.

  • Posted

    A few years ago I was prescribed Atorvastatin which resulted in pain in my legs and shoulders. I stopped taking it and it took almost 2 years for the symptoms to fully clear but you should see a big improvement long before 2 years. I was prescribed other Statins which also had side effects so now I simply refuse to take any Statin. I prefer to control my diet.
  • Posted

    I too experienced this sort of pain whilst on statins,it got so bad at one point that I couldnt move or even get out of bed.  I ended up in the ER at the hospital I was so scared.  The registrar there asked me if I was on statins, when I said yes, he told me it was probably the statins causing my probs.  I flushed them down the toilet the minute I got home.  The muscle pain and weakness took a long while to ease off So I kept asking my doctor to get more investigation done.  I had an ultrasound and it showed up that I had a full thickness tear in my right bicep tendon (rotator cuff injury) and severe inflammation in the left.  I asked the ultrasound technician and my doctor what could have caused this as I hadn’t done any extreme exercise or other injury.  Big shrug of the shoulders and the usual waffle about it being ‘age related – wear and tear, etc’.  I’m now convinced that the statins weakened my muscles to such an extent that it left them weak and prone to this sort of injury.  You may wish to ask your doctor to refer you for an ultrasound, which will show up not just tears but inflammation also.
    • Posted

      I also got a rotary cuff tear,i guess its quite common to develop shoulder issues etc. I honestly felt so wierd while on simvistatin i thought i was dieing.
    • Posted

      I am convinced that statins do damage to your muscles.  I have had ordinary muscle pain/strain before -- but this pain was beyond anything I have ever experienced.  Just guessing here, but since the damage to your muscles is so severe, and puts them into a weakened state, it seems logical that one could easily cause a tear in muscle tissue because of the weakened state induced by the statin.  So, I guess the ignorant doc could say "oh, the statin wasn't the 'direct' cause of a muscle tear" and get away with that statement -- but, he/she should be smart of enough to admit that the statin weakened your muscles into such a state that even the slightest attempt at performing an ordinary daily task may have created the tear.  

    • Posted

      Thanks Mark.  You're so right when you describe it as beyond anything experienced before - exactly so.  I asked my physio what in his experience would cause this type of full thickness tear and he said either weightlifting, gymnastics or a muscle wasting disease - that was it!  I'm not either a weightlifter or a gymnast and I definitely dont have a diagnosed 'disease' that would cause muscle wasting - so what was the only other factor............statins. 

    • Posted

      Mark

      I read your post.thanks for the info.I have experiencing muscle spasms in my back it takes my breathe away .I yell out because it hurts I can actually feel the muscles contacting in my back. I thought it couldn't have been amlodipine because they are similar side effects . Pravastatin she gave me a blood test to to find out if the muscles are breaking down so I'm waiting for the results and today I decided not to take that and I felt a lot better along with some spiritual nourishment it is left me incapacitated for weeks and I can't pick up my grandson I've been in the house for a week I've lost the whole weeks of wages besides quality of life I want to thank you for sharing your story

    • Posted

      Amen, my pain in my back was so bad I could feel the muscles Contracting literally rolling around tightening up like a ball in a knot and I would yell out in pain like I had Tourette's syndrome doctor brought this to my attention he didn't think it was m lodipine he had a feeling it was the status. She gave me a blood test to see if the muscles are breaking down and that has a lot to do with the Pravastatin I took myself off of it I couldn't take the pain anymore I can't work I can't do anything and I'm not taking medication I tried to do yoga exercises thank you all for sharing your stories

    • Posted

      Muscle spasms in the back was one of my worst symptoms. They did the blood test..it was normal..soo.dont know how reliable that is with statins.
    • Posted

      Hope you feel better,i very rarely get back issues any more. Keep us posted. Tell your doc to look up people commenting on statin side affects. I had to tell my husbands doc that as he acted clueless..a doctor not admitting they caus side affects to me is not believable.
    • Posted

      I have a bunion which never caused me any real pain til about 2 years ago. I had an MRI andd found out that the ligaments around that area are 'disrupted' in dr speak or torn to us. nothing can be done other than surgery which I wouldn't even consider. Nerve pain in the foot is unbearable. 4 dr's suggested lyrica ..............the side effects of that are catastrophic, glad I didn't take them. I didn't take them i researched them because of the effects of statins. Podiatrist and physiotherapist but think it's caused because of statins but medical drs don't

       

    • Posted

      HI Jane.   From what I have read, most medical doctors will look for some other underlying cause of the statin side effect.   The thinking, I guess, is that since only 12% of statin users have these effects, it is more likey that there must be some other medical condition that is causing the issue...and not the statin, because the general medical population believes that they "save" more lives by giving someone a statin, and it is part of their general treatment plan --- follow the doctor playbook and ignore the patient.  Malpractice/cover-your-ass may also play into their decicions as well.  Hence, they will often insist on putting you through a battery of tests to find out what your "real" problem is.  I can imagine that it must be tough for them to admit that what they prescribed for you (statin) was the real cause of all your pain.  In any event, it does seem only logical that if statins cause muscle damage or weaken your muscles; then, the chance of having a muscle "tear" dramatically increases while you are on statins (and even after being off of statns for a period of time until (if) your muscles repair themselves),

    • Posted

      Of course that begs the question if statins are supposed to 'save' people from heart attacks, why are heart attacks still the leading cause of death in most of the world? It has to be so much more than 12% too doesn't it Mark, I initally put a lot of symptoms down to age menopause and I'm sure thousands of others do to sad It's like the old joke. What's the difference between god and a doctor? god doesn't think he's a doctor

    • Posted

      There seems to be a correlation between inflammation caused by the statins and  Polymyalgia rheumatica  

      In my case I got the Polymyalgia rheumatica first. The steroids were working and the doctor was weining me off a little at a time. I went to a cardiologist and me placed me on prevastatin 40 mg. I started to have problems getting up. After 6 weeks on the statins, I had my blood work done for the Polymyalgia rheumatica and my inflammation was-back up.  I stopped the statins the next day. The pain in the shoulders and upper arms and neck and hamstrings were so bad I could hardly move. Worse  experience  I have had with pain and I don’t want to go back there either. 

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